Welcome to Hacker's Hope

This site is dedicated to telling my story. In 2019 at the age of 47 I was given the label of having a motor neuron disorder, most likely ALS. My family and I are not accepting that as a diagnosis and are fighting to overcome it. Our friends and family give us the support and encouragement that we need. They give us HOPE.

To date I have been to 30 medical professionals, had 2,003 labs performed, EMG's, EKG's, X-rays, MRI's, Cat Scans, Bone Density Scans, a muscle biopsy, a nerve biopsy, and a spinal tap. I have changed the way I live. The way I sleep, the way I walk, even what I eat. Everything I do has an impact on how I feel. I'm doing everything I can to reduce inflammation in my body. All while trying to minimize muscle cramping. I currently do about four-six hours each day of home treatments. With funds raised we were able to purchase equipment including a hyperbaric oxygen chamber, ozone generator, ozone sauna, ozone insufflation, red light panels, photobiomodulation laser, rife machine, oxygen concentrator, infrared sauna, and an ice tub.

I will be adding to my story on this site, as well as posting updates. But right now take a look at the fundraiser posts below. My sister and a few great friends are hosting a Chicken BBQ and Basket Raffle on October 2, 2020. There are also two raffle tickets that you can purchase to help out. I can't thank everyone enough for their generosity and support. All money raised will go towards my medical and treatment plan. I don't know the exact path that I will need to take but I do know that I will need funds to pay for additional ozone blood therapy, stem cells, exomes, high dose IV vitamin c and other treatments not covered by health insurance.

No comments:

Post a Comment